The 36-hour day a family guide to caring for people who have Alzheimer disease and other dementias
"Through five editions, The 36-Hour Day has been an essential resource for families who love and care for people with Alzheimer disease. Whether a person has Alzheimer disease or another form of dementia, he or she will face a host of problems. The 36-Hour Day will help family members and caregivers...
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| Main Authors: | , |
|---|---|
| Format: | Books Print Book |
| Language: | English |
| Published: |
Baltimore :
Johns Hopkins University Press,
2021.
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| Edition: | 7th edition. |
| Series: | Johns Hopkins Press health book.
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| Subjects: | |
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Table of Contents:
- 1. Dementia
- What is dementia?
- The person who has dementia
- Where do you go from here?
- 2. Getting medical help for the person who has dementia
- Evaluation of the person with a suspected dementia
- Finding someone to do an evaluation
- The medical treatment and management of dementia
- The physician
- The nurse
- The social worker
- The geriatric care manager
- The pharmacist
- 3. Characteristic behavioral symptoms in people who have dementia
- The brain, behavior, and personality : why people who have dementia do the things they do
- Caregiving: some general suggestions
- Memory problems
- Overreacting, or catastrophic reactions
- Combativeness
- Problems with speech and communication
- Problems the person who has dementia experiences in making himself understood
- Problems the person who has dementia experiences in understanding others
- Loss of coordination
- Loss of sense of time
- Symptoms that are better sometimes and worse at other times
- 4. Problems in independent living
- Mild cognitive impairment
- Managing the early stages of dementia
- When a person must give up a job
- When a person can no longer manage money
- When a person can no longer drive safely
- When a person can no longer live alone
- When you suspect that someone living alone is developing dementia
- What you can do
- Moving to a new residence
- 5. Problems arising in daily care
- Hazards to watch for
- In the house
- Outdoors
- Riding in the car
- Highways and parking lots
- Smoking
- Hunting
- Nutrition and mealtimes
- Meal preparation
- Mealtimes
- Problem eating behaviors
- Malnutrition
- Weight loss
- Choking
- When to consider tube feeding
- Exercise
- Recreation
- Personal hygiene
- Bathing
- Locating care supplies
- Dressing
- Grooming
- Oral hygiene
- Incontinence (wetting or soiling)
- Urinary incontinence
- Bowel incontinence
- Cleaning up
- Problems with walking and balance; Falling
- Becoming chairbound or bedfast
- Wheelchairs
- Changes you can make at home
- Should environments be cluttered or bare?
- 6. Medical problems
- Pain
- Falls and injuries
- Pressure sores
- Dehydration
- Pneumonia
- Constipation
- Medications
- Dental problems
- Vision problems
- Hearing problems
- Dizziness
- Visiting the doctor
- If the ill person must enter the hospital
- Seizures, fits, or convulsions
- Jerking movements (myoclonus)
- The death of the person who has dementia
- Cause of death
- Dying at home
- Hospice and palliative care
- Dying in the hospital or nursing home
- When should treatment end?
- What kind of care can be given at the end of life?
- 7. Managing the behavioral and neuropsychiatric symptoms of dementia
- The six R's of behavior management
- Concealing memory loss
- Wandering
- Why people wander
- The management of wandering
- Sleep disturbances and night wandering
- Worsening in the evening ("Sundowning")
- Losing, hoarding, or hiding things
- Rummaging in drawers and closets
- Inappropriate sexual behavior
- Repeating the question
- Repetitious actions
- Distractability
- Clinging or persistently following you around ("Shadowing")
- Complaints or insults
- Taking things
- Forgetting telephone calls
- Demands
- Stubbornness and uncooperativeness
- When the person who has dementia insults the sitter
- Using medication to manage behavior
- 8. Symptoms associated with mood change and suspiciousness
- Depression
- Complaints about health
- Suicide
- Alcohol or drug abuse
- Apathy and listlessness
- Remembering feelings
- Anger and irritability
- Anxiety, nervousness, and restlessness
- False ideas, suspiciousness, paranoia, and hallucinations
- Misinterpretation
- Failure to recognize people or things (agnosia)
- "You are not my husband"
- "My mother is coming for me"
- Suspiciousness
- Hiding things
- Delusions and hallucinations
- Having nothing to do
- 9. Special arrangements if you become ill
- In the event of your death.
- 10. Getting outside help
- Help from friends and neighbors
- Finding information and services
- Kinds of services
- Having someone come into your home
- Adult day care
- Short-stay residential care
- Planning in advance for home care, day care, and respite care
- When the person who has dementia rejects the care
- Your own feelings about getting respite for yourself
- Locating resources
- Paying for care
- Should respite programs mix people who have different problems?
- Determining the quality of services
- Research and demonstration programs
- 11. You and the person who has dementia
- Changes in roles
- Understanding family conflicts
- Division of responsibility
- Your marriage
- Coping with role changes and family conflict
- A family conference
- When you live out of town
- When you are not the primary caregiver, what can you do to help?
- Caregiving and your job
- Your children
- Teenagers
- 12. How caring for a person who has dementia affects you
- Emotional reactions
- Anger
- Embarrassment
- Helplessness
- Guilt
- Laughter, love, and joy
- Grief
- Depression
- Isolation and feeling alone
- Worry
- Being hopeful and being realistic
- Mistreating the person who has dementia
- Physical reactions
- Fatigue
- Illness
- Sexuality
- If your spouse has dementia
- If your impaired parent lives with you
- The future
- You as a spouse alone
- When the person you have cared for dies
- 13. Caring for yourself
- Take time out
- Give yourself a present
- Friends
- Avoid isolation
- Find additional help if you need it
- Recognize the warning signs
- Counseling
- Joining with other families : the Alzheimer's Association
- Support groups
- Excuses
- Advocacy
- 14. For children and teenagers
- 15. Financial and legal issues
- Your financial assessment
- Potential expenses
- Potential resources
- Where to look for the forgetful person's resources
- Legal matters
- 16. Long-term care arrangements
- Types of living arrangements
- Moving with the person who has dementia
- Nursing homes
- Finding a long-term care setting outside the home
- Paying for care
- Guidelines for selecting a long-term care facility
- Moving a person to a residential care facility
- Adjusting to a new life
- Visiting
- Your own adjustment
- When problems occur in the nursing home or other residential care facility
- Sexual issues in nursing homes or other care facilities
- 17. Preventing and delaying cognitive decline
- Usual age-associated changes
- Risk factors identify potential targets and possible approaches for decreasing the risk of dementia
- Cardiovascular factors
- Physical exercise
- Social and intellectual activity
- Diet
- Education
- Diabetes
- Depression
- Toxins
- Head injury
- Age
- Genetics
- Medications
- 18. Brain disorders and the causes of dementia
- Mild cognitive impairment
- Dementia
- Alcohol Use Disorder Associated Dementia
- Alzheimer Disease
- Amnestic (Korsakoff) Syndrome
- Cortico-basal Ganglionic Degeneration
- Depression
- The frontotemporal dementias
- HIV-AIDS
- Lewy Body Dementia
- Parkinson Disease Associated Dementia
- Primary Progressive Aphasia
- Progressive Supranuclear Palsy
- Traumatic brain injury (TBI or head trauma)
- Vascular dementia
- Young or early onset dementia
- Other brain disorders
- Delirium
- Stroke and other localized brain injury
- Transient ischemic attack
- 19. Research in dementia
- Bogus cures
- Research in vascular dementia and stroke
- Research in Alzheimer Disease
- Structural changes in the brain
- Brain cells
- Neuroplasticity
- Neurotransmitters
- Abnormal proteins
- Abnormal proteins within brain cells
- Infection
- Nerve growth factors
- Transplants of brain tissue
- Metals
- Prions
- Immunological defects
- Head trauma
- Drug studies
- Epidemiology
- Down Syndrome
- Old age
- Heredity
- Gender
- Neuropsychological testing
- Brain imaging
- Keeping active
- Effect of acute illness on dementia
- Research into the delivery of services
- Protective factors
- One disease or many?
