Everything no one tells you about parenting a disabled child your guide to the essential systems, services, and supports

"The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability right...

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Main Author: Coleman, Kelley (Author)
Format: Books Print Book
Language: English
Published: New York City : Hachette Go, 2024.
Edition: First edition.
Subjects:
Summary: "The honest, relatable, actionable roadmap to the practicalities of parenting a disabled child, featuring personal stories, expert interviews, and the foundational information parents need to know about topics including diagnosis, school, doctors, insurance, financial planning, disability rights, and what life looks like as a parent caregiver. For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child's success. Over and over, parents are being asked to reinvent the exact same wheels. According to the CDC, "Every 4 1/2 minutes a baby is born with a birth defect in the United States." That's 1 in 33. There's no handbook for how to do this. Until now. Presented with empathy and humor, Everything No One Tells You About Parenting a Disabled Child: Your Guide to the Essential Systems, Services, and Supports gives parents the tools to conquer the stuff, so that they can spend less time filling out forms, and more time loving their children exactly as they are. With over a decade of experience navigating these systems for her own child, author Kelley Coleman presents key information, templates, and wisdom alongside practical advice from over 40 experts, covering topics such as diagnosis, working with your medical team, insurance, financial planning, disability rights and advocacy, and individualized education plans. Everything No One Tells You About Parenting a Disabled Child gives parents the tools they need to stop wasting unnecessary time, money, and stress. If you need to know how to actually do the things, this book is for you"--
Physical Description: 291 pages : illustrations ; 22 cm
ISBN: 9780306831706
0306831708
Author Notes: Kelley Coleman is a feature film development executive turned author and advocate for parent caregivers and individuals with disabilities. Her writing and advocacy draw upon more than a decade of experience accessing the supports necessary for children with disabilities-including her own child-to succeed. She lives in Low Angeles with her husband, two boys, and her son's trusty service dog.