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The unexpected journey finding strength, hope, and yourself on the caregiving path

The day Emma Heming Willis's husband, Bruce Willis, was diagnosed with frontotemporal dementia (FTD), all they were given was a pamphlet and told to check back in a few months. With no hope or direction, Emma walked out of that doctor's appointment frozen with fear, confusion, and a sense that her w...

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Main Author: Willis, Emma Heming (Author)
Corporate Author: Viking Press
Format: Books Print Book
Language:English
Published: New York, NY : The Open Field/A Penguin Life, [2025]
Subjects:
Willis, Emma Heming > Biography.
Willis, Bruce, > 1955- > Mental health.
Willis, Bruce, > 1955- > Family.
Dementia > Patients > Family relationships.
Dementia > Patients > Home care.
Caregivers.
Resilience (Personality trait)
Hope > Psychological aspects.
Frontotemporal dementia > Patients.
Personal narratives.
Self-help publications.
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Summary:The day Emma Heming Willis's husband, Bruce Willis, was diagnosed with frontotemporal dementia (FTD), all they were given was a pamphlet and told to check back in a few months. With no hope or direction, Emma walked out of that doctor's appointment frozen with fear, confusion, and a sense that her world had just fallen apart. In fact, it had. Bruce and Emma had their story written, their future mapped out. Yet all those dreams crumbled with that diagnosis, and Emma felt alone and more isolated than ever. How would she care for her husband while parenting their young daughters? At that devastating time, Emma just wanted someone who'd been through it to tell her, "This feels terrible right now. Your life is in shambles. But it's going to be okay. Here are some things to think about and put in place so you cannot just survive but thrive." With The Unexpected Journey, Emma has written the book she wishes she'd been handed on the day of Bruce's diagnosis: a supportive guide to navigating the complicated, heartbreaking, and transformative experience that is caregiving for your loved one. Weaving her personal journey as a care partner with the latest research and insights from the world's top dementia, caregiving, and integrative experts she offers the guidance and wisdom caregivers everywhere so desperately need to hear.
Physical Description:xxxii, 288 pages ; 24 cm
ISBN:9780593833940
0593833945
Author Notes:Emma Heming Willis is a mother, step-mother, wife, advocate, and co-founder of Make Time Wellness, a brand devoted to women's brain health. After her husband, Bruce Willis, was diagnosed with frontotemporal dementia, she became a passionate voice for care partners and families navigating neurodegenerative disease. Through her storytelling and advocacy, Emma hopes to help others feel less alone on the caregiving journey. This is her first book.

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