A face for Picasso coming of age with Crouzon syndrome

At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons w...

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Main Author: Henley, Ariel, 1992- (Author)
Format: Books Print Book
Language: English
Published: New York : Farrar Straus Giroux, 2021.
Edition: First edition.
Subjects: