A face for Picasso coming of age with Crouzon syndrome
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons w...
| Main Author: | Henley, Ariel, 1992- (Author) |
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| Format: | Books Print Book |
| Language: | English |
| Published: |
New York :
Farrar Straus Giroux,
2021.
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| Edition: | First edition. |
| Subjects: |
| Summary: |
At only eight months old, identical twin sisters Ariel and Zan were diagnosed with Crouzon syndrome, a rare condition where the bones in the head fuse prematurely. They were the first twins known to survive the disease. They endured numerous appearance-altering procedures as they grew up. Surgeons would break the bones in their heads and faces to make room for their growing organs. While the physical aspect of their condition was painful, it was nothing compared to the emotional toll of navigating life with a facial disfigurement. Here Ariel explores beauty, identity, resilience-- and the strength it takes to put your life, and yourself, back together time and time again. -- adapted from jacket |
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| Physical Description: |
378 pages ; 22 cm |
| Audience: |
Ages 12-18 Grades 10-12 |
| Bibliography: |
Includes bibliographical references. |
| ISBN: |
9780374314071 0374314071 |
| Author Notes: |
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